Im about to start first round of high dose methotrexate and rutuxin. Will be given inpatient because of risk to kidney's. Has anyone had experience with this treatment. I've only heard of lymphoma pts on RCHOP. They're doing methotrexate because of the dural envolvement. Any info would be great. Hairloss? nausea? Diarrhea? Etc? Thanks...JO
Jo Baby, I don't have direct experience with what you are going through, though I am here to help you in any way that I can. You are in my thoughts and prayers.
Thank you for you thoughts....Jo
I also have no experience with getting Methotrexate but I do know they use it frequently. I sure hope it does the trick for you with the least amount of side effects. Your in our thoughts, keep us posted so we can all learn.
I had methotrexate with my RCHOPS. I had four doses given to me the first four times of the six RCHOP infusions. I am not clear on what your question is, so I guess I am merely sharing that I too had it. My last Chemo was in May of 2010. I am happy to report I am forgetting many details. I got rid of many things in my house that take me back to that time so I could forget. For me, the cancer, the NHL had gone in my brain in the last few days before I started the RCHOPS, so it was for the cancer in my brain. NHL in my brain, not another type of cancer. I got an epidural, I think it is called. It hurt but as you probably know you get so used to being poked it didn't really hurt that much. It would probably hurt more now. I can not tell if you are saying you are getting methotrexate instead of RCHOPS or in conjunction but all I can say is lived through it. Looking back, it was no big thing. While you are going through it, it makes you feel very crappy. Why are you being given methotrexate? Anyway. Hope this helps. The only comment I have is do your research before taking any additional vitamins or other supplements. There are things are that not compatible with methotrexate. It is hard on your system, but as I said, I lived through it without any major complications and am here today totally cancer free.
hi zoey, thanks for your post. I go to the onc on Friday to find out exactly when and what treatment, but my Neuro onc said Methotrexate with Rutuxin. The reason is I have systemic Lymphoma that has spread to the Dura of my Brain. I don'thave any spacific questions I just noticed that most people get that RCHOP. I guess it's because of the brain envolvement. Did you loose your hair? Not that I'm to worried about that part. I've been bald before. Ya I didsome research and alot of my meds for lupus interact with it so I'll have to go off them. They also use Methotrexate for lupus so hopefully going off my meds wont make it worse. Anyways congrats on your remission. I look forward to the day I can say the same. God bless.....JO
Hi There. Yes. I lost EVERY HAIR on my body. It was kind of cool actually. Who knew, I had a pretty shaped head. That part is strange losing your head of hair. I had long blonde hair, but losing all the hair on your body and having smooth skin was nice. I am back to shaving my legs. Wink Wink....And while I have a thick head of hair now, it did not grow back blonde.
In specific on things not interacting, there is something about folic acid and methotrexate. I am not going to give advice on it because I am not a doctor and there are mixed opinions. But my suggestion is you ask your doctor specifically about it.
Methotrexate is a really strong drug. I was very happy to be finished with it. But when the cancer went in my brain it was very scary. I felt like I could not chew or when I tried to speak that I was having trouble with words. Chemo is a nasty thing to go through but it is worth it. Hang in there.
Hi Zoey,Ya I've heard about the Folic Acid. I had brain Surgery in 2004 for hydrocephelus and I to had a nice head. my sweet husband shaved his head so I wouldn't be alone in it poor guy looked like an alien. HAHAHA I told him never to do that again. Are you younger or older. Supposedily it's rare for NHL to spread to the brain, less rare in the elderly. I am 33, and my NHL is supposedily idolecent. B Cell marginal Zone, but it's everywhere they call it Systemic. I don't look forward to the treatment, but I'm ready to be free of this paracite even though they told me it probably at some point will come back, but it's not likely to come back in the brain. Thanks for the ear..
.....JO
WOW I am learning lot's I feel really bad for both of you Jo baby and zoey. I am really happy to hear that when all was said and done you, Zoey, are cancer free. Something to look forward Jo baby. I to will be happy to say that, I just finished round 2 of R-Chop. So far I am able to keep working with the exception of a day or so, hopefully that can continue. Hugs and prayers go out to all my new found supporters take care.
Keep the fight people,you can do this too.God bless,Michele
Jo Baby. I turned 50 last fall. Kind of strange. But true. And yah for that......