I am currently caring for two little girls with ATRT. One is My sister one is my daughter. Obviously there is a gene being carried thats causing them to get this horrible disease. Does anyone have any insights or suggestions on caring for them and things of that nature.
http://www.caringbridge.org/visit/liyamariahaudrivee
The Valentine Bunch, thank you for being here. Did their doctors give you any help and/or guidance on caring for them at home? Please know that we are here for you and here to help you in any way that we can.
Thank you so much. Yes i have some guidance in caring for them. They are in the hospital most of the time. Thanks for your support! you can visit the girls site if you would like.. www.thevalentinebunch.weebly.com
Of course, please know that we are here for you and here to help you in any way that we can. You, your daughter and sisters are in my thoughts and prayers.