I am currently caring for two little girls with ATRT. One is My sister one is my daughter. Obviously there is a gene being carried thats causing them to get this horrible disease. Does anyone have any insights or suggestions on caring for them and things of that nature.
http://www.caringbridge.org/visit/liyamariahaudrivee
The Valentine Bunch, thank you so much for being here with us. I don't have any direct insight on what you are going through, though I am here to offer my help and support in any way that I can. As well, I am hoping that one of our Supporters will give you more insight and information. Please know that we are here for you. You, your sister, and your daughter are in my thoughts and prayers.