Hi Everyone:
Is there anyone that have a Allogeneic transplant lately and how was the procedure? I would like some information?
I will be doing a biopsy on Tuesday and I hope everything will go fine as I stil lhave a 5% cancer cell still in their and they think the "Folotyn" will clear it up.
Hoping to heare from someone soon.
Thanks
Hi Donette, I do not have direct experience with what you are going through and asking, though I am here to offer my help and support in any way that I can. You are in my thoughts and prayers. Sending you tons of healthy healing energy.
Thanks for responding. The transplant that I am having is my brother stem cells and the transplant is PSBC. Just wanted to know if anyone done it here before.
Hi Donette, thank you for giving us more information. I am hoping that one of our wonderful Supporters here will be able to give you better insight.
Hi Donette,I did find some info for you on that other support group.Here's the address: htt://pub39.bravenet.com/forum/3271268735 I have been a part of this support group since 95.DaveP writes about his transplant,Shirls also had one but you'll need to look back through the threads.Hope this helps. Take care Michele
One more thing-DaveP has a web page called: NHL Playing on the wrong league If you type this in the page should come up
hi donette
I'm from new zealand. i recently had a peripheral blood stem cell transplant -PBSC- with stem cells from my sister.
where are you at with your transplant? what have you been told about it? what have you read about it?
how are you feeling about it? lots of emotions I would guess.
i recently had a transplant for angioimmunoblastic t-cell lymphoma - this is a type of peripheral t-cell lymphoma.
I'm at day 56 now - that means 56 days after day 0 - the day of infusion of the stem cells.
i can tell you heaps of stuff about the transplant experience but i need some questions from you because an allogeneic transplant has risks and i would like to be sensitive to how much you want to know - this is an area that your doctor will talk to you about.
I was given terrorising information due to a lot of complex circumstances and for me it was helpfull to get different points of view - maybe you are different and only want the minimum - but i suspect that if you are asking questions on-line then there is some stuff you want to know.
get back to me with some info and some questions and i will respond to them if i can.
i can also offer some advice if you want it -however if you write your problems, issues, questions, fears, hopes down in a post - there will be a good chance that you will be able to come up with ideas and practical actions that will suit you
loonereclips
Hi loonereclips.
Thanks for sharing your transplant with me. At the moment I am waiting on my brother to arrived from Jamaica and he have to do some testing before I have the transplant. I would love to hear all the details you can tell me about it. You are the first person so far can tell me anything, and I would love to know how it went with you and how long you had to stayed in the hosital and if you got the GVHD after and are you on any medication. You can email me at [email protected] with the information. I have the same t-cell lymphoma that you had, but after I did my bone marrow biopsy they found I that I had 5% cancer cell left in their and they put me on “Folotyn” that was just approved by the FDA in january and I just had last 6th treatment yesterday and have to do another biopsy on Tuesday 22nd and then I will no the result after.
I am hoping by next month the transplant will begin.
Hoping to hear from you soon.
Thanks very much…
Donette
donette
just wrote a long reply to you and then my connection failed and i lost the lot
bummer
will try again tomorrow
it is nearly 1pm in the morning in new zealand