Did anyone else have to be tested more than once to get a po

Did anyone else have to be tested more than once to get a positive blood test? My
Blood work comes back negative but my small intestine biopsy comes back positive for marsh 1 my symptoms have gotten worse over the years now I suffer from chronic hives and angioedema as well as everything else ...

1 Heart

I don't have this but yes a couple of my friends were tested like 5 times before it came out and yes they suffered so badly from it. Don't give up on this test and you demand them to keep doing it that you are suffering right now. Stay strong and keep us up to date on how it goes. Have you tried to change your diet at all? You can do that even if you don't have results yet and you might feel better.

1 Heart

Thank you I have been fighting this for almost 4 years I have only been tested 1 time for celiac through my blood I have had 2 endoscopys both showing lymphocytosis in small intestine as well as erosions and red and inflamed stomach GI doc says I may have celiac ( may have it?) ahhh isn't it your job to find out for sure ... I tried gluten free for about 2 weeks before I gave up cuz I told myself I do t have it my blood was negative.... I'm trying again now just started today as GI doctor has said I might as well try it

1 Heart

@Mammaof4 Well try and do this and see what happens but don’t give up on doing the test as many times as you need to. You deserve to feel better.