Hello everyone, I'm new to the group and these activities altogether. I was diagnosed with stage IV Difuse Large B Cell Lymphoma in Nov 2009 at Duke University Hospital. This was done by removing a lymphnode for biopsy. Since that time I've been on two clinical trials involving agressive dosages of R-Chop and a newer one involving DNA modification. Not much success to date. I am interested in a 2nd + opinion on where to go next. Has anyone any ideas in addition to my internet searches on how to locate a Doctor or Hospital that may specialize in specific types of the desease particularly resistent to treatment.
Thanks
Hi Ttfarst, welcome to Support Groups, it's wonderful to have you here with us. Other than online research, I don't know how to correctly direct you to the right doctor for a second opinion. Though, I am hoping that one of our wonderful Supporters can help give you better insight. If you need help with research, please let me know. You are in my thoughts and prayers.
Welcome Ttarst,Welcome aboard.Not real sure what you are asking.Are you looking in or outside your area of North Carolina?I believe this is where Duke is.Found 11 drs who have expertise with NHL in Durham area 6 have awards.You can check also at:www.lymphomation.org ---- Patient recommended docs Good luck,Michele
Thanks for the tips on Drs. I am not specific to any particular area. I am fortunate to have Duke, UNC, and Wake Forest University Hospitals in my area and am probably well covered. I was interested in any input on how to find if there are any renowned ones specializing in resistant strains on the disease. I'm investigating all areas that I can think of. For lack of better criteria I'm looking at awards, affiliations, and publications to indicate activity and success. I just heard about the website and will check it out.
tt-
why not give a call to the Weill Cornell Physicians’ Center for Lymphoma and Myeloma, a well-published highly cited and very aggressive group of hematology oncologists who publish frequently on second- and third- line therapies for DLBCL.
Ross
tt.
wow, that is tough. It did seem dire to me (and every one around me) around chemo 3 like I was getting sicker and so I turned to the cancer fighting kitchen cookbook. I hired someone to cook from that book. While I firmly believe fully, can-not-emphasize-that-enough, in western medicine I do attribute changing my eating to that book to helping me get better. Good luck finding a new doctor.
Thanks again for your comments. I have consulted a Wellness consular who has me eating organically. I must admit it is tough. Part of the regiment is to only eat raw foods and those that have not been taken over 118 degrees Fahrenheit in preparation. No dairy, no meat, no sugar, salt, or other spices. In addition mega doses of vitamins. I don't know if it is working but I will need to get off of it due to weight loss.
I'll follow the Weill Cornell connection and see where it leads me.
ttfarst