Greetings. I have been living with Graves for half a decade now. I have never really talked about it before because it was unseen for me; so, I figured it should be unheard too. So it is scary for me to talk about it. I was diagnosed in my early teens. I had no family history of it too, so it was a mystery for me. The doc told me I may go into remission. I clung onto that hope. This summer we were planning it, to wane me off my meds to see how my body would do. But my thyroid went out of control a month ago. I felt the worst I have been in months, my relationships, schoolwork, and my own sanity have taken its toll. The results were literally off the charts, and my liver was feeling it too. I felt even worse. It never changed me drastically before but I was told point blank that I would never go into remission now. I was literally dreaming of this option since day one. I have to get radioactive iodine this summer and is it as bad as it sounds? Will I feel myself drastically change? Would it affect my whole summer? Does it really get better? I have read scientific articles about how you are more likely to die of cancer and quality of life will be worse for 6-10 years because of this treatment. This really scares me, that it is going all so fast. Please... any help/advice I would greatly appreciate it.
All the best,
eev