Hi there! Mainstream Health Maintenance Organization in a large medically-sophisticated city. Surgeon was very nice, biopsy doctor was very nice, mammogram specialists were very nice, receptionist was very nice. But! (1). They told me to arrive at 1:25; also at 1:30; also at 1:45. (2). They told me to not eat after 9:45am; also not after 10:45am; also not after 11:45am. (3). I specifically requested a support group, and surgeon told me she would get me in touch with social worker to find me support group, but she hasn't yet. (4). I was given a reminder that my appointment was on Wednesday, also that it was on Tuesday. (5). I was told I would have to strip 100% naked and wear a gown for the bone scan, and when I got there they had me keep all my clothes on for the scan. (6). In-person instructions were so garbled that I asked them to repeat it twice: you can eat now but come back at 4pm. I returned at 4pm to find that they had wanted me to come back at 2:15 and they didn't want me to eat yet....And I haven't even gotten the surgery or other treatment yet. Makes me feel not so confident that they know what they're doing. And this is a facility that has received 5 stars out of 5 for the past 5 years! Ugh! How dangerous are these folks? How safe? How confident can I be about them? Do I have to keep an eye on them every inch of the way? How much dare I trust them? I'm feeling so angry! And scared. Anyone have similar experiences? How to navigate it? Etc. Thanks!
You could call and ask for the manager of that dept. Explain to them what's been going on and it's quite confusing and upsetting. See if they can explain what's going on. It needs to be brought to their attention.
Nice to interact with you again! Hope all is going well in your life. I apologize for taking so long to thank you for your response; my excuse is that the breast cancer diagnosis is such a surprise and shock, and I'm discombobulated and emotional, and my whole life is s-l-o-w-i-n-g d-o-w-n as I adjust and try to figure out what the heck to do next.
Thanks for your suggestion. It's not exactly one department, so I'm not sure exactly what to do. It's several departments, several buildings, several towns, etc.: Mammography. CT scans. Surgery. etc. It's also complicated of course by the fact that I don't want to get on the bad side of the surgeon, CT scanner, etc. since they have so much physical and psychological power over me.
I've got a medical appt. now, so I will continue this response later.
Sorry to never finish this post. Too much has happened in the meantime. I found that dealing with this breast cancer takes hours a day! (Phone calls, emails, appointments, research, etc.). Other people find this so? Since this post, I got the results of the surgery back. Stage 1B, 4 lymph nodes cancerous, they are prescribing chemotherapy, much to my dismay.