I just joined to see what this is about. I'm so desperate & just want to cry every time I speak to my mother. She has dementia & it's getting so bad. She talks or asks questions and they are so convoluted that I try to clarify things and it just makes her mad. She hates talking to me - she says she feels like she's always flooding something wrong. I hate that I don't know what to say or that I get caught up when she's so normal and so very much herself that I let my guard down. Then WHAM!!! She doesn't remember the past 5 minute conversation or plans or some arrangement. She is in town for a family member's wedding and it's going so horribly bad. I just feel so lost.
I suggest reading the book, "Still Alice". You'll get a glimpse of her world. I am a dementia patient and believe me--it's pretty bad on this end too. My husband is thankfully easygoing. After today, I'll probably forget I've been to this site.