My sis-in-law had a seizure last May and ended up having surgery the next day. She was diagnosed with a glioblastoma. I went up to stay a few weeks to help them but it turned out to be three months. I became her caregiver because she was well enough to leave the hospital(read that insurance wouldn't cover)but she needed 24/7 care. We went through all the traditional. She was on Temadol. I took her to all her radiation. She never lost her hair. She never got sick. However, dementia was setting in. When I went with her for her last treatment, the dr thought things were as good as they could be. She was still walking/doing her exercises,etc. One week later we had to bring her into ER and her medoncologist didn't think she would make it through the night. That was in August. The original surgeon refused to operate because the tumour was too widespread. She was then transferred to a nursing home and is under hospice care. It's just a matter of time and we all know it. The major problem is that I had to leave cuz I have my own family away from there and now my brother is so alone. We talk on the phone and there are other family members around but they are not the most supportive. Plus my brother is not the most open person. I finally got him to agree to going to a support group if I found one. And it is not easy to find one long distance! I've found the every other Mon/Thu type of thing but he has to work for a living and can't drop it so he can go hold hands with some stranger twice a month. Hey, even AA knows you need to be with people who are going through the same WHEN YOU NEED THEM! Is there anyplace out there like that? I know I am going to have issues trying to get my bro on here but I am gonna try.So, if ther is anyone out ther that can give me any assistance, I would So appreciate it. Family is everything and we all need to do whatever we can to help. If nothing else, I have been able to verbalize my feelings and I so appreciate that. Thank you.
terrisn
having been in the same position during the latter part of last year its easy to forget that the best place to ask is the hospice themselves where the nearest care group for survivors is,
the one my sis inlaw was in had weekly meetings there at the hospice for people to get to gether and chat about things that were worrying them as well as help with the final arrangements
hope this helps
as always loving thoughts and positive vibes
D :)
My mom just passed away from the same thing. She had a GBM. It's awful because once diagnosed, you honestly don't have that long to live---i learned that the hard way. But ask your hospice about support groups. They help, just this online one helps a lot for me because it lets me know that i'm not the only one going through this and that it IS possible to get through rough times. I'm praying for you and your family because i know exactly where you're coming from.
Hi: My husband of 49 years just went into Hospice. Three months ago he got a headache, lost some of his language and speaking skills. He had part of his brain tumour removed but it is "rapid growing stage four". He had 10 radiation treatments but it didn't seem to help. He still walks, eats, but talking in full sentences he can no longer do. He's a very fit man, worked out every second day, never smoked or drank, no salt or sugar or added fats. Why? And what am I to look for next? How, what steps does this cancer take next? I need to know so I can help him thru it, but am told that nobody can know. Some of you have been thru this, can you tell me anything? I don't want to put you thru more pain, but if you can tell me anything I would appreciate it. I love him so much and can't bear to see him go. Altho he is not in pain now, he has been and will be again, so Hospice has Morphine for that time.