I was up getting my days and nights intertwined,,I would love to have 8 hours of sleep in a row. I am in Tennessee and do not know really anybody to talk or socialize with. Tried dating, that was a great experience. As soon as they see oxygen concentrator, neb machine, and let us not forget the real clincher the hose you drag around with you. I have 2 dogs that have been my support and exercise companions. I like to fish if circumstances willing. A lot of times I ride my Harley and yes it does have a sidecar. Could never pick it up, if it fell.
My real goal is to meet someone and do things with and socialize with. Well if anyone read this thanks.
5 Hearts
Well read every word :-) get back on that horse and keep trying, you'll find him soon enough :-)
1 Heart
@Stony369
Stoney,,,you may have to talk me thru a few things, like profile and support page
Welcome larbaree6. We're happy you are here. Let me try and guess..... COPD? I absolutely love your story. I too, have all those items you mentioned except I only have 1 dog. lol There are amazing people on this site. I hope 1 or all us can help you find what you are looking for. When you read this post look to the left and hit "reply" . I'll be here a little bit longer and definitely tomorrow. Sending you a hug to welcome you>>>
@Annie5241
Are you in Tennessee or is this a nation wide ordeal
1 Heart
@Stony369 Hey Stony, I see we were both trying to help him at the same time. Sorry…I tried to reply but every time I hit reply it takes me to home advisor and all kinds of stuff. Can you get through? Sending a hug
My page keep on jumping around
@larbaree6 I understand I was having the same problem. What can you tell us about yourself?
@Stony369 need to find someone local to give me the once over all what I can and cannot do,still have not figure that out
LOL
@Stony369 your message look like shit,can not read a lot of it
Larabee6, I feel you frustration. Eight hours sleep, consistent and uninterrupted would be heavenly, but I haven't seen it in forever. For me and others I talk to, our sleep is broken into little bits and pieces. It truly is frustrating. How long have you been on oxygen? I notice you said you sometimes ride your Harley. Are you able to go w/out your oxygen for periods of time or do you ride with it? Hope you have a good day.
@Annie5241 good brunch I guess we can say it is,anyway I have plenty of air as long as I am moving,especially in the evening air…the aroma of the flowers blooming, fresh cut grass or the small of the earth freshly tilled. I have a enigon concentrator. I limit where I go,I still have a problem with using my oxygen or my nebulizer in front of others,because I guess it would mean that I have to face the fact,I am vulnerable and weak,I was always the one who never had to depend on help from others,that is a reason why I sought out this site,I still have days that I feel invincible and normal…until I over due it, and then it could take me a week or little more to feel good again,my immune system is weak,the long and the short of it is i don’t have anyone who understand this,sorry for the photo it was the only one that would load,
We ( doc and I ) have been weaning me off steroids for the past year. Just now at 5mg a day. Will see how that works. I know it causes many people to gain weight and it did me in the very beginning. Over time I guess my body just got used to it. I've been on a daily dosage for a long time. Odd you should mention the insulin because my doctor just took me off of it and put me on pills. They are far more comfortable than shots, right? Lol b Happy to hear no hospital stays in 2,years. That's grounds for a celebration!,,, Sending balloons your way >>>>>>>> How's your appetite? Are you able to eat meals or do you snack throughout the day.
@Annie5241 sorry for the late response,yes I was a 6 month hospital patient, I truly believe that the treatment is worse than the disease. My DR. Here have tried what my body says and his knowledge of medicine,when I initially went down,the DR in Florida gave me 5 yrs to live,that was 13 yrs ago,I have lost at least 8 friends to this disease,I was hoping to meet locals ,but this has turned out making me feel like I have a purpose,been lacking that since I forced out of work,please keep me informed about your progress,
Hmm, just checking in with you. How has your day been? I know you have a lot of experience with this illness so my question is this.....how has your appetite been effected? Are you able to eat big meals or do you snack throughout the day?
For the longest time junk food, if I tried eating decent meals most of it was wasted (dogs).how are you feeling??I enjoy speaking with you,
@larbaree6 if it is alright with who ever and want to, open invitation to my dirty place, maybe a BBQ
Only if you feel comfortable and want too.