Just got through my first year with being dx with lupus and fibro. It's spring time and the sun is shining! I went out to plant flowers in my yard and after about 30min in the sun my skin HURT and my body just gave out... It's sooooo frustrating! I want to be in the sun, I want to be outdoors going to yard sales, thrift stores, nursery's. But now I have to be careful spending time in the sun. Does the sun hurt anyone else with Fibro? Or maybe this is my Lupus... UGH.. The two are SOOO hard to distinguish...
My grandmother has Lupus. Its changed her life. She. Breaks out sometimes but overall, she stays strong. I am prpraying for you
I was diagnosed in '98. My husband and I got married in '04 and went on our honeymoon in St. Lucia. After a day and a half my arms broke out in what looked to be hives but they didn't itch and I was totally wiped out. I had on 50 SPF. So the rest of our honeymoon I had to stay out of the sun and when I was in the sun I had to be covered and wear hat always! Swimming in a pool in a long sleeve shirt "hot stuff". I really do feel your pain. I do go outside but either first thing in the am or later in the afternoon. I have been in and out of flares for the last year. I have been stressed to my max. Good luck - let's get through this together!!
Hi I'm new to the support groups site. I have been diagnosed with Lupus for 15 years. The sun does affect me. Are you taking any medication? I'm on Plaquenil and you do have to watch the sun while taking the medication. There is an online store where you can buy sun protective clothing. It's called "Coolibar". They have quite a few things to choose from with clothes, hats, sunscreen, etc... It really works well.
@kaydee6 Thank you. I’ll check that out. Yes I am taking Plaquenil 200mg twice daily. I noticed this year that the sun is tanning me, but still causing itching that requires benadryl and it still saps the energy right out of me!