Ok so since diagnosed with hsv1, I have also been diagnosed with extreme depression, extreme OCD, and extreme anxiety and now see two therapist regularly and won't leave my house unless it's for work and have cut my ties with all family and friends after being diagnosed July 2014. I have been to numerous doctors, family doctors, phschotherapist, dermatologist etc. After noticing bumps on my mouth I went and got tested, all came back negative besides HSV1. These bumps on my mouth are small and get swollen from time to time, but never turn into cold sores and still have yet to go away, may I add that I am now experiencing the same thing down below. So everyone swears it's not HSV because HSV comes and goes, but mine comes and never goes and now has spread although non of the above docs know that it has spread because I don't disclose since they have done me no good at this point anyway and basically make me out to be crazy for letting this effect me the way it has and almost get teased because they think I'm just in denial of what's going on. I am not. I may not always have the best answers, but who does? So, I take every supplement known to man, I take valciyclivor for suppression and have noticed nothing, I also went through a 30 day supply in 7 days at 4mg a day, 2 in the morning, 2 in the evening. Still nothing. I never mention suicide because I won't mention it, I'll just do it if I never get resolution, but it shouldn't have to come to that, I don't want this virus removed as it cannot be, I get that. I just want the physical symptoms to go away. They are not even going through stages, they just appear as tiny bumps and get red and don't disappear....ever. Now I'm sure all of you are thinking the same thing the docs are, it's not related. However, being that it has spread down below, the same exact symptoms, leaves me to believe I am indeed right. Also at the same time, I noticed a bump on my actual white of my eye ball, after seeing eye specialist, he diagnosed it as a pinguecula and that folks in the south usually get those, not people in the Midwest "Illinois". Will someone please recommend SOMETHING, as I am exhausted from getting on google everyday all day when not working. I have asked to switch mess and doc says no, it's not HSV but gave me the valciyclivor almost as a shut up get out of my office deal, but not exactly as we are somewhat close as far as a patient/doc relationship, at least I think we are. Please help someone with the physical aspect of what's wrong, not concerned with the mental stuff right now as the physical is what's causing most of the mental......thanks in advance.
I think at this point it might be helpful to see a specialist... dermatologist, virologist etc.... go doctor shopping until you find a specialist that will sit down, take note, and find a reason for what you are going through. I recently had to jump from an ENT to a rheumatologist to a neurologist before a felt heard. Another time I went through about 4 different doctors on a different issue before the 5th one actually listened to me (and it turned out I was right). Even if it turns out to be something different, an answer is better than medication just thrown at you. please keep us updated!