Had my 3 month check up today. I mentioned the intense itching, night sweats, and fatigue. She(Oncologist) ordered a CT scan ( head to toe) on Tuesday and will see her next Friday. Not sure what is going on. Blood work OK. Does anyone know of a good web site for interperting the results. I know a high LDH level is common in NHL. Are there other indicators?
I have been off work the whole month of April and was headed back 1/2 days starting Monday, Now I will be off all next week. This is so frustrating. I am beginning to feel better. And the weather here is crappy. Cold, rainy, and gloomy. Where's Spring????
Wishing each one a Happy Easter and a nice weekend wherever you are.
Hi Stitches,Oh the itching how well I can relate.My problem is normally the itching in my case stops once treatment starts.I feel as though life is at a standstill as I'm not well for weeks after treatment to truly get things done.At least like you said if the weather would co operate we might feel a little better.Hope the Easter bunny is good to you HA HA MicheleDX95FNHL3
I say my life is "on hold". Living on benadryl doesn't allow you to be motivated. I am going to try some other allergy medicine today for the itching. Any suggestions?
Yesterday was 2 yrs from diagnosis. Still feels almost surreal. Makes me wonder what's next.
Hi Stitches. Sending good thoughts your way.
ithcing would be bothering me. Hope Claratin works.
I'm not afraid to ask the pharmacist for over the ounter stuff.
I know Allegra is now over the counter for allergies, but i don't know if it helps with itching. Claratin might be cheaper?
Wishing everyone all the best!
Sending healing hugs, too! Bet spring will be here in a week.
Thanks for the suggestion about the pharmacist. May try and get ahold of one today. I did try Claratin this weekend. Still needed Benadryl.Itching gets worst as the day goes on. Strange? Night sweats have happened the last 3 nights, woke up the same time each night. Strange also?
It is raining today. So good day to watch movies. I will be going to a "Look Good, Feel Better with my best friend tonight. She is being treated for breast cancer, and has lost her hair. So she needs a make up change.
It was nice here yesterday. Did some yard work. I got a little color on my cheeks. I was pumping water off my pool tarp and putting water in the pool. Come on summer!
Thanks for the healing hugs. Not a lot of people know what I am going through right now. Not even my parents. Don't want them worrying anymore than they have. When I have some answers, I will tell them.
Broke down and took Benadryl yesterday and darn near fell asleep walking.Had to PUSH my body through it all.Maybe working more is the ticket for me.I agree about the parent thing,they worry way more then needed.Mine have both passed but I still feel their presence about.They are now my guardian angels.Keep the faith,Michele DX95FNHL3
One of the sites that CBC (complete blood count) can be researched is surgeryencyclopedia.com. After you get to their main page type CBC into the search box. To find other sites that cover the topic, use keywords [cbc wbc rbc definition] without brackets in any search engine. That will pull up a list.
My wife bought me a wooden back scratcher months ago. I'd rather scratch the itch than to take medicine. I know I'm in the minority in this group because it seems that most people don't mind taking more pills.
Hi, All! So grateful for the suppport of this great group!
Stitches, I'm with you. Why tell your parents if all they do is worry?
We're safe here. We get it. It's so nice to be able to go somewhere and learn and feel safe, I think.
I'm sending good thoughts and happy thoughts to all!
I like that movie idea, too!
Watched the new Hallmark movie last night. It was good.
Woke this morning to rain. Again. I am tired of this weather. but as they say in Michigan, stick around a minute and it will change. So true. Have even seen the sun. But it didn't stay out.
CT scan later today. I really don't know how I feel about it. Which is worse. Something is wrong, or we don't know what is wrong. This has been a fight for the last 2 yrs. So many variables with NHL. When I think this might just be a flare up and I can deal with it, then I think I can't handle it. Results will be known late Friday.
I am ready to go back to work. I'm getting bored. Have been off 5 weeks now.
my prayers are with you hon. im on a three month break from the chemo due to damage it was doing to my organs, so i know that ichie feeling all to well and the tiredness it just drives me insane i want my energy to come back somedays it seems like it is but like today went to walmart pharm and then had to get some groc and just the walk over to food area i was wore out already!!!! i just have to get some of my energy back ive got gbabys to chase here this summer and cant wait!!! any tips on how to rebuild the energy would b awsome. make sure you keep us up on those test results and know we are all here for you.
candy
I am so greatful for all the kind words and support. The CT scan was done, now just have to wait for the results.
It is raining here again today. Was supposed to start golf season tonight. Don't think that will happen. Was so looking forward to it. I am on a league so I know I get to golf one night a week.
I tossed and turned all night. Sweating, hot, then cold. No fever. So, I think a nap will come early today.
I talked with my counselor last night, trying to sort out the negative feelings and thoughts. I need to think more positive and to accept what is happening. I think when you have cancer it drives home your mortality. Not that I am going to die soon, but it makes you realize your affairs should be in order. My son is 23 and married and no where near able to handle the decisions that would have to be made. Also, no one knows where my important papers, bank accounts etc. are. I have been single for 18 years.
Sorry for the rambling but thoughts tend to run away from me. Hope all has a day filled with sun shine.
Stitches,Strange you saying about your important papers.Wasn't so very long ago I told hubby and daughter where to find things.Just got the cemetery paid off last year.No one likes to think or talk about such matters but we're all going to leave at some point.Should hope not right now but we never know when it's our turn and better to leave our family prepared.I figure here's what will happen to me.....my house is be dirty...LOLThe sunshine somehow makes life so much happier so hope them dark doomy clouds fade away and you soon feel the sunshine on your face.Take care,Michele DX95FNHL3
Hi! Yes, we are starting to get our papers together since the dx.
So much easier on the family, I think, the less they have to decide when the time comes. My dad did that for my mother as the last thing he could do for her when he knew his cancer was worse.
Some keep a will in a safe box, sone at home in a fire safe box. They sell them for about $18 and up at Walmart and office supply stores. Then, we need to tell our families where the box or papers are.
I've heard that DNR (Do Not Resussitae) papers whould be accessible and at home. I have a living will, too. No attorney needed - just want others to be able to use my heart or whatever's still working. : )
I won't need it.
Anyway, it's a relief, I feel to get things like that set up. Anything to relieve some stress huh?
I did get to golf last night. It started out cloudy, misty, and chilly. By the 4th hole, I put my shades on and lost my coat. Sun came out and it was a perfect night out. It was great to be outside doing something I enjoy. Tired today. Used muscles that haven't been used in a while.
I made a list of all the important papers and where they are at. I keep adding to the list. Didn't realize all that would go into this.
Tomorrow I will change the oil in my lawn mower. Hope to mow on Saturday. That is a job I like. I can zone out and not think about anything.
I will get my test results late Friday afternoon. So am hoping to be released to go back to work next week.
To all the members in the weather beaten states, I hope all are safe.
Great! you must live close to us as that was our weather,and I did the same thing with a parka.Can't believe you change your own oil.I will mow but the rest is on hubby.Will cross my finger for a good report.Report back with the news.Have a great day,Michele Dx95FNHL3
Good news for the time being. CT scan does not show any swollen nodes. The Oncologist wants me back in a month. Blood work, and visit with her. I was taken off Rituxan due to itching. I discussed with her maybe going back to it along with an allergy pill daily. Bone marrow biopsy has not been done. She is considering during one. The night sweats are happening on a regular basis. We discussed the "waxing and waning" of this cancer. Pretty sure that is what was happening. I agree with that. The posts on here have helped me understand it better.
I will be going back to work on Tuesday, 1/2 days the first week. The Oncologist agrees that I made the right call by parking my behind and resting. I feel better about that. Other good news is I may get paid for the month of April. I am excused on FMLA, but this could go short term disability through my employer. That would be great. I will call them Monday morning.
Today the weather has been great . Sunny, but cool. Changed the oil in the tractor and will mow tomorrow. I even started the weed eater. Next up will be the rototiller.
Thanks for the support. Wishing everyone sunny weather for the weekend.
Hi Stitches,Glad to see your report was good.Though I was wondering how many treatments did you do?My onc sent out the steroids and said use Benadryl cream.I'm praying to God this helps as my back and ears are pretty raw.Hope you get your money they should pay you.Are you a farmer?? My word all that hard word for one woman WOW!Sending caring wishes your way.Michele DX95 FNHL3