Ok so I supposed to go Monday to do an intake. The head had looked at my medical records and decided that he wanted inpatient. However, it is not an option. I can do a week but I cannot do any longer. They said not to come on Monday since I could not agree. One of their worries is refeeding syndrome? Something I had never heard about. Can any of you help me with this and is it comman?
I am going to research and see what to avoid and try this on my own. I am with a counselor.Just wanted to know if anyone has had experience with this.
no i have'nt hun but just wanted to comment and give you abig support hug. someone on the boards should have some knowledge/experience.
jteach....I work strictly with the eating disorder population, and 'refeeding syndrome' is a real problem for some people, but only for a short time once they begin to feed their bodies again.
This has a lot to do with how your body has in a way, forgotten how to digest and absorb nutrients and fluids, you may experience a significant amount of fluid retention at the beginning of refeeding, which can be seen by an abnormal amount of wt. gain very quickly. Your renal system and circulatory system need time to adjust to functioning normally again. We watch closely for this at the River Centre, and we have a plan to help people avoid serious problems if this occurs. We have never had to send anyone to a hospital because of this, but we do watch closely to make sure that it normalizes within a reasonable period of time.
This can be a dangerous phenonmena, if not noticed or monitored, and it's seen more in people who has a chronic history, or more bingeing/purging, laxative abuse, or simply severe restriction. I think you can find more on the Internet about this.
Was this facility saying that they could not accomodate you because of this possibility?
I hope you can work it out to get help. I am always happy to discuss treatment options with anyone for the River Centre (www.river-centre.org) 419-885-8800.
Good luck...Jan ♥
Thanks wiffyatthehub. Nice to know I am not alone and you care. Right now I am struggling.
Janurse-I am just confused and frustrated. I am doing what I thought I should do then.... History, I was going to do an intake in a program hoping for outpatient. I am willing to do the drive several times a week if need be but I cannot see jumping off a cliff for a long stint. So the program called back and said that if I would not commit to inpatient long term then there was no need to come in. That I was a risk of refeeding syndrome. I have an ICD and MD. I told them I could do one week. They said nope. So now that I have reached out and been turned away, I will see about doing it on my own, once again. I will do it just as always. So my body will be strong but I will die on the inside. I am so tired of being alone. I go to counseling but he is not a specialist with eating disorders. There is nothing in my area within 50 minutes that is. SO more to talk about with him on Monday. Right now my attitude is whatever. whatever will happen whenever. I am to tired right now to fight or care. Goodnight and thanks for listening. Sorry that I never get on with happy news. I will give you some though. Every morning I give a baby a bottle. he greets me and calls for me to stay. His greeting is MOOOO!! I have a baby calf whose mother would not take. So my husband, daughter and I brought him home. It is nice to watch him grow.
jteach....while I don't know your medical status, I do know that refeeding syndrome can be managed, when you know how to handle it, and it will resolve in pretty short time. I don't know your location, but I am happy to discuss possibilities with you for treatment at the River Centre.....we can help you. The reality is, outpatient treatment is very seldom enough for someone to get a handle on this, and be able then to handle it all with only once or twice a week therapy sessions. It's too complex, and it's too much to ask of someone to make those hard changes without being in a supportive environment for at least a week or two.
Please remember the bigger reason you need to do this...your LIFE! If you can't compromise a bit now, you may have to compromise for a much longer time if your condition worsens. Please take care...Jan ♥
Janurse- a week I can do. I have looked at the river-center web today. I am thinking about it. It is a distance away so I worry that insurance may not cover it. The distance is not an issue except for the insurance issue. I love road trips and this long one would be time to think. My other problem is all my docs are here that handle my cardiac and md issues. Although they are not happy with me at this point I trust them completely to make decisions even during this.
jteach.....give me a call if you want to discuss this. ONE week is a stretch, so I don't want to give the wrong impression that it would be enough. I'm just saying that interrupting that cycle is the first, and most critical step. As far as insurance goes, if the company is a nationwide company, and we are in network (even sometimes if we are not), we can usually work something out.
Take care....Jan ♥
I had to go through that when I was in treatment... It was not pleasant. I had horrible night sweats and constant pain - they described as coming off herion.... Not to scare you - it has to be done to be healthy and get your kindney and liver functions working again...
Well at this point. Since I have gotten myself into this mess. Things that I try to do are not working, I am going to start adding calories tomorrow and work through it. If I have issues then I will deal with them tomorrow. I have counseling on Monday morning. Life is so lonely sometimes. I know yall think I have lost my mind and to be honest I am not sure I haven't but... Yes I am scared but options seem as closed doors. I am going to read and make sure I start with good foods. I am also going to let my one person at work that knows all know what is going on. Being at work is better than being at home alone. That way should something happen they know who to contact. I also know that this is not a solution but staying away from my family is not an option. I know the cycle will start again but maybe I will be able to get through more counseling before. Pray for me. Going to nap been in class last night and all day today.