Super worried and helpless. I don't have a diagnosis. I don't have any treatments. But I'm really unwell! Getting worse. Makes me very upset. Pain has me crying! No sleep. Anyone out there? Alone and sick with no answers
Do you have a primary doctor that can give you a referral to a psychiatrist?
No, my physical symptoms are the problem. I was well 2 months ago! Thanks though
@Mighty_mert I hope you can get into see a Dr soon.
Have you been to a doctor about your pain? And sleeping... lack of sleep makes pain worse. I'm speaking from experience. Finding a solution for sleep should help your pain at least a little. I'm sorry you're hurting so badly.
Yes, I've been to the ER twice and the PCP Dr . I've had a CT heart scan, CT head scan, chest x-ray, and lots of blood work. Today I did get a referral for the orthopedic doctor for the neck pain. So at least that's something. But I just still can't believe how different my life is now vs 2 months ago.
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@Mighty_mert I totally understand not being able to believe how different your life is suddenly. It’s been 2 1/2 years since I became disabled, and I’m still so sad about all the things I’ll never be able to do again. It sounds like you are working really hard to find out what’s wrong with you, and you are doing your best to figure it out. I hope the orthopedic doctor can help your neck. Maybe mention that you’re not sleeping and see if he/she will prescribe something. At the very least sleep would give you a break from the pain.
Sorry to hear this and of your frustration. Bodies are sooooo complex and exhausting when they do this to us unexpectedly -always while we're making other plans.
Would it help to journal out a lot of that frustration and questions attacking you? Figure out a way to get rid of some of the stress....
Just get thru each test one at a time and only think of today. Not tomorrow yet. We are thinking of you and supporting you.
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@Littlesis7 Thanks! I absolutely have needed hearing those positive messages! I have a new compassion for people dealing with chronic struggles now. I think they must be the strongest people on earth! Because my struggling has been short compared to years, and yet it has been all I can do to take each day at a time. I really do appreciate you, and everyone else who comments on these posts and makes me not feel alone!
I just saw this, and I am sorry that you are feeling so overwhelmed by the change in your health. Pain is definitely no joke. I have been dealing with pain most of my life. I had back surgery when I was 30 and I am now 62 and have had so many things happen that I just count them all. The worst part is just like what you are going through right now, and that's when you dont know what is happening and what to expect and that causes lots of anxiety. I am kind of going through that also right now. I have a serious cervical injury that they wanted to operate on last year and then I somehow recovered and the pain went away. Then recently I hurt my back when I lifted some things and was unsure if it was muscular or if it was an anatomical injury. It definitely can be frustrating when you don't know and the long term prognosis is still up in the air. Not making this about me, but just saying that I understand what it feels like when your life suddenly changes and you can't do normal life. What do you know so far? Do you feel alone, cause that is a huge factor I think too. I am here if you feel like talking. Saying some prayers for you as well. and hope things will change for you soon or at least get an understanding of where you are at.
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