The pain is too much

Physical Health Chronic Illnesses & Conditions
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Hi. My name is Shirley and I am new here. I have fibromyalgia along with a whole list of other problems I wont mention. I have had this disease for many years and have watched it get worse and worse the older I get. I am 42 now and in the middle of a bad flare up. I am the single parent of two teenage boys 15 and 12.
Yesterday, I tried sleeping through the pain and felt worse when I got up. I managed to sty out of bed for 2 hours the entire day. My doctor wants to see me but I cant get in and out of the car, little on stand the carseat on my back So I sit with no meds but my Lyrica which is doing nothing.

I keep fighting the urge to just quit but it is hard when you have no support system in place. I can't see myself living this way for the rest of my life. I am also fighting to not self medicate. I havent had the urge to do that in many years. But I have to get some relief. I dont know how much more I can take.

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Hi Shirley, welcome to Support Groups, thank you so much for being here with us. I am so very sorry for how you are feeling and for what you are going through. Please know that you are not alone, we are here to help you through this in any way that we can. This site may be helpful for you as it is very informative and lists treatment options; http://www.myfibro.com/ and here is the natural treatments section; http://www.myfibro.com/fibromyalgia-natural.

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Thank you for your reply. It is good to know there are people out there that understand what I am talking about. I will check out the sites and see what I can learn. Thanks so much.

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dear Shirley, i am glad that you are on support groups. this is a really fine support site and i have gotten alot out of it myself. please keep posting and feel free to support others with your own experience strength and hope. i know what you mean about things feeling worse rather then better as time goes on, and the importance of keeping in touch with your doctor cannot be stressed. i will add you to my prayer list and encourage you in your own conversation with your higher power. let me know how that is going if you like. all my best, with faith and hope, marnie marie a humble prayer warrior

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Shirley, please let me know if there's anything more that I can help you with. Please keep sharing with us, we are here for you.

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Hi Shirley. So glad that you are here with us. I came here becuase I was so desperate to communicate with others who truly understand this debilitating disease. I was diagnosed in 2004, but the last two years have been the worst for me. It's also hard when you have stress in your life, and lack of support from family members. My husband is just now starting to come around with helping me out more, and although he says he understands my pain, I know that he doesn't. Unless anyone can actually experience the pain and emotional distress with this illness, they have no idea just how horrible it can be.
I was on a bunch of drugs until the beginning of this year, when I stopped taking everything, except for Tylenol arthritis for my pain. I found that the drugs didn't really help, and when my doc tired switching me to Savella in Feb., I had such horrible side effects, and at that point decided that I was tired of all of it. I tried chiropratic adjustments, which helped some, and I'm taking a bunch of really good supplements. Recently just started going to an acupuncturist for pain and to help balance my body. I'm finding that by eliminating processed foods and eathing a more organic diet, has helped some. Right now I'm trying this Master Cleanse to detox my body, and hoping to find relief there. I'll keep you posted on that.
I will keep you in my prayers. Lots of hugs! xo

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HI, I'm also new on this site. I relate to Lost and Patty a lot. I'm 43 & a single mom, had fibro and CFS it seems like forever, but it has been really debilitaing for about 12 yrs. I had to quit working 5 yrs ago because of it. My parents and 10 yr old son do no believe in the fatigue, think I am lazy and seem to not remember that I am in horrible chronic pain. They all think I should have the energy of a normal person. I am in bed a lot more in the past year. My son is tired of me not being able to play much at all anymore and my parents think I can't be a mom and want my son to stay with them because of the fibromyalgia. It is bad enough to be in pain and exhausted all the time, but to not have any family support, and the stress of my parents trying to get my son from me is horrible. The stress makes the symptoms worse. I moved and am in need of new doctor's as my old one's are a bit far away. I guess I just needed to vent, and will see how this support site works. It is comforting to read of other people going through the same illness, I feel a little less alone. Just thought I'd make a comment for the 1st time.

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wow flmom, my heart goes out to you! that is so tough not having your parents to support you and trying to get your son away. i would be devastated as i am sure you are. that has got to more than hurt.

this is a great site to be on and you will get lots of support from alot of different people, myself included. you can click on alot of differnt options and keep on trying don't give up. sometimes it takes awhile before people start responding. start a journel and post it in as many differnt groups you belong to, or start a new discussion and announce yourself as new looking for support.

meanwhile, i reccommend to all to practice a consciouse contact with a higher power, God and fill up your heart space with His wisdom and guidence. i will keep you in my thoughts and prayers and wish you all the best with faith and hope i am a humble prayer warrior.

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dear PattyG51, i wanted to welcome you as you said you were new, and so am it. i have gotten so much out of this site i wouldn't do without it even though it causes me pain and fatigue to go online at times it has become my mainstay of support. and i have found the more i give it away the more i keep it!

i wanted to mainly give you feedback about your diet. i found that with the fibro, diet is so important. sugar is a real killer for me and if i eat it my pain goes way up. there are other foods that are associated with sugar or have it in there that i avoid too. "bad" carbs had to go out of my diet as well. and like you i had to try to go over to the more natural and organic foods.

one lady on the site put it this way, to eat whole foods. this says it all to me, and thats what i try to do, eat whole foods, in their natural and when possible organic state the way God intended. and for some dairy can be a food trigger as well.

anyway thanks for bringing up a good topic that has really changed my life since i paid attention to it. i wish you all my best with faith in your wellness and hope that you are on a good path of rejuvenation, from a humble prayer warrior.

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Hi Shirley,

My name is Tiffany i'm 35 and also new to this site. I have fibromyalgia as well as a laundry list of other things too. I have two sons 17 & 16. I take Lyrica also and get little relief, I have found a homeopathic topical called Topricin that has helped me tremendously. I was diagnosed roughly a year ago and in this short amount of time the pain has progressed very quickly. If there are any ideas/suggestions you could share that would be much appreciated.

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Hi Shirley,

I am new here also.

One of the things that I have been finding myself needing support for is my chronic pain.

Very intense and 24/7.

I can relate to your post about not being able to get up.

I have had some doctors appts. where unless a friend gave me medicine I would not have made it. I had a few others where I went "as is" and was embarrassed as it is very difficult to hide the pain , try as I might, together with my inability to properly groom and dress , again because of the pain.

I am still undiagnosed, so that does not help (the mind) so I'm trying to stay positive, though I have read the fibromyalgia and have all the symptoms.

In my scenario, I lost my business , thus my job, and my industry was nearly wiped out to boot. At 45 years old, and no money, no income THEN I GOT SICK.

I avoided going to the dr. one for money and one for pride, I kept hoping it would go away on it's own, tried everything I could on my own to heal myself.
Nothing worked,

I finally swallowed my pride and went to the County to get help.

Now that I 'm in there they are VERY SLOW moving and I am watching my condition get worse while I keep waiting.

Good thing is after six months I finally got a doctor to give me pain medicine that actually works!

Hard to get pain meds here in Florida as there is a ton of abuse.

Yes the drugs are dangerous and addicting BUT when I am in so much pain I am lying on the couch and cannot move and am crying from the pain.
Got so bad I could not even read any longer, which was all I had left to do.

My heart goes out to you.
In chronic pain your entire life changes.

It is very tough. I know the feeling of wanting to give up.
It has done that to me too.

On bad days I say to myself " i cannot live this way"
it really sucks, when you cannot just get up and do the things you want to do.

Just please try to hang in there, know that you are not alone.

I know it is easier said than done, but we can do this.
We can get through it.

I hope that your doctor will tune in your pain meds for you.

I hate to have to take something least of all these drugs with their **** side effects, but again, it is better than being incapacitated each day.

I found that for me , it also causes depression.

Saying prayers for you.

I had to accept my condition(s) and find some peace w/ myself the way I am.

Knowing that our purpose here is more than meets the eye.
It's great that you have come to find help online.

Prayers for you to feel better.

I know there is not a helluva lot we can do sometimes with this thing.
Please make sure the doctors help you and be a squeaky wheel if you must to let them know you need a better plan for your treatment.

Again Shirley you are not alone...!!
We must hang in there and keep our hope alive.

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