Hello! I am just wondering what YOUR story is... Mine starts out when I was diagnosed with PCOS over 11 years ago. I found out just a few months after I gave birth to my son. I was told I could no longer have children. I had had a miscarriage before I got pregnant with him. My OB-GYN put me onto birth-control pills to stop my ovulation so some of the scars would heal. Well, I was on them for over 3 yeas when I started to feel the cysts come back. I stopped taking them and made a dr's appointment. Well, I couldn't an appointment for a few weeks and I was leaving on a vacation anyways, so I was OK with no pills. I went on a planned trip with my parents, leaving my hubby home, so he said "goodbye" with some benefits. It turns out, I got pregnant 15 days after I stopped taking my BCP's!
My daughter is now 7 years old. My dr never did say why I felt like the cysts were returning, but I am glad for my daughter!
It is my wish for all who suffer with PCOS to be able to have a child if they wish one!
Since my daughter's birth, I was on BCP's for years. Then 3 years ago, I had my tubes tied. I let me dr know about the PCOS symptoms from years past and he told me let him know if they return after I went off "the pill" and had the surgery. They have not returned!
I don't know if I "got over" the PCOS or my hormones changed, or what, but I have not had symptoms of PCOS in many years!
I turned 30 this year I have been married almost 4 years and I am starting to believe that I have no options to become a mother. I haven't limited my attempts of getting pregnant to just the time I have been married I have known I wanted to be a mother my whole life. As far as I know I have never became pregnant, I have always had irregular periods, and have recently been diagnosed with PCOS. Also just so you have as much of the picture as possible, I had a grapefruit sized cyst on my right Fallopian tube back in 2007 so both the tube and the cyst had to be removed. Since then my periods have pretty much become nonexistant, typical progesterone treatments (Provera) do not work they have not been successful stimulation a period. We have found that Megace (aka Megesterol) does work but it is a very severe medicine and so I am only taking it every 3 months to have the necessary periods to avoid further issues. Wow, I have so much more to say... but I think I better stop there at this point, otherwise no one is gonna want to read it all.
I was diagnosed with PCOS at the beginning of the summer. I was put on metformin but it doesn't seem to help any. My sister also has PCOS. She was getting sharp pains in her stomach for about a month that would subside after a couple of hours. She was taken to the hospital one night and the doctors ran tests and discovered a cyst that was larger than a softball connected to her ovary. She had emergency surgery to get the cyst removed and she lost her ovary in the process. I was told that the same thing could happen to me someday. I don't feel any different since I've been on the medicine and I have no way to tell if I have the cysts or not.
But I am happy to hear that you no longer have symptoms of PCOS.
I was diagnosed with PCOS a long time ago and my doctor's way of handling it was just to put me on birth control pills. Over the years, I have gained so much weight and have had poor self-esteem because of the excess hair I have in places most women don't have hair. I feel a little embarrassed about that. Now that I recently switched doctor's, she basically told me that I shouldn't try to have children because I suffer from depression/anxiety along with PCOS. Besides, my chances of conceiving on my own are slim. That just made me feel awful about myself. My primary care physician said that I should see a nutritionist because of the PCOS. She was right. This nutritionist could tell I had PCOS just by looking at me and she explained how she could tell. She explained how I should be eating to help me lose weight easier but she couldn't guarantee anything. It's worth a try.
hi girls,
im very new to this and have been looking for some support. my story is, i was diagnosed with PCOS 2 days ago! it came as a big shock, as i hadnt heard of this before. i have been blessed with a child 3 years ago, my husband really wants another child and is quite shaken by the news of my diagnosis.
im not too sure how to feel really. im being treated for eating disorder/bulimia and depression & anxiety, i had no idea all this is related to the condition. i have always had a tendency to be overweight, i just have to look at a carbohydrate and put on 5kilos! i decided to started losing weight when i put on alot with my pregnancy, and it got a bit out of control and now is an ED as i have a severe fear of fats/carbs and sugars. im confused as now im being told that i have been doing the right thing for myself by keeping away from these things, and am encouraged to not put on any weight now, where as for awhile now, docs have been trying to encourage me to put on weight!
i was always looking for answers for not seeing my period for months on end, under developed breasts and excess body hair, i just put it down to side effects of having very low body weight. i am glad that i finally have a name for what my body is going through, but am scared of the future as well. im a bit concerned about losing my hair, but i suppose there isnt much i can do to avoid it if its going to happen though.
im going to stay positive about things, i feel much better when i look at what i still have rather than what ive potentially lost :)
Hi...
I am new to this site, just diagnosed today with PCOS. I had gone to the dr to have my glands checked because I am losing my hair and very overweight, well she ran a whole lot of test and said that this also had the same symptoms and it came back that this is what I have and my glands are fine. I also have had 5 miscarriages in the past couple of years and she said that is why I have had them as well. I am glad that there are sites like this.
To all the above - I hear your pain and I hope you get all the help you can here! :-) I love being able to share my story and hear about yours... :-) I wish everyone a very happy new year! :-)
A little of my story... I was diagnosed with PCOS when I was 16, and I am now 26. When I was first diagnosed my physician said there wasn't much research out on PCOS, but in recent years I feel like that has changed a lot. It is still a struggle. It has never bothered me much that I was told I could never have kids (I don't want one, and neither does my fiancee), but the weight I have put on over the years HAS bothered me. Ive been overweight since I was 5 years old, and my weight escalated at the end of 2008 when I weighed in at 300 pounds. I was fortunate enough to afford surgery for a LapBand, but today I wish I had put that money into getting a nutritionist. I've lost down to 245 pounds, and still have a long way to go. I will graduate in August and become an RN (FINALLY graduate with a degree I can do something with!). One of my first moves will be to get a nutritionist, and really talk about what it's going to take to lose the weight, and keep it off.
I got diagnosed with PCOS 2 months ago. I'm on Metformin and my insulin levels are just fine. I've tried the shot, the patch, and multiple forms of the pill to get my periods under control. Next step is to try an IUD (Merena) to see if that helps to regulate my periods. As we speak, I'm having some of the worst PCOS pains I've had yet. Are there any home remedies for the pain (heating pad or the like, etc.)?
great home remedy rice in a sock toss in the microwave and put a few drops 5-10 of mint oil, and lavender oil on it and apply to area. Cheap and inexpensive way to releave pain.
When I found out I had PCOS I cried in relief. For the first time in years I knew it was not my fault I could not loose this extra weight. Since I was a teen I had always had very painful periods, fainting, and hypoglycemia. Physically I never really grew breasts in a family where that seemed to be the norm. By the time I was in my mid-twenties I started gaining about 20 pounds a year I could not loose. I lived a very active lifestyle, ate sparingly, and so I assumed I wasn't disciplining myself enough. Doctors only told me I needed to loose weight and I was anemic mostly due to the heavy bleeding.
By the time I was 26 years old PCOS hit me hard. I had dark swollen patches under my arms, no periods, terrible fatigue, constantly craving sweets. I had to shave my face and was still fighting the weight by exercising aggressively. It took me doctor two more years to finally do a simple ultrasound and confirm the diagnosis. If they had done this when I was 18, I would have never gained the weight and been much happier to this day. Now it is a fight for me to regulate my endocrine system so I CAN become healthy again and do the things I enjoy doing.
I take Metformin, 2000mg a day (500 4x a day). It costs me 10.00 for a three month supply. I also take Insulite's PCOS system, it has all the newest vitamins known for helping PCOS plus naturopathic and herbals that help me loose weight and have more energy. I figured if it has shown results in other women, it would in me as well. I also take D-Chlor_Insitol and Fish Oil twice a day to spice it up.
And I have to stay away from carbs, specifically fast good carbs, sodas, and sweet drinks. All sweet things are bad for PCOS people. AND craving them is a sign of insulin resistance. PCOS literally makes you want to eat. I can't stress this enough so for women feeling ravenous, it is NOT your fault. So I hope this helps you because I know, YES you can have a baby with PCOS (so don't forget birth control) and yes PCOS can go into remission; lots of women found getting pregnant often does that.
So their is hope! You just have to work really hard and you are going to feel depressed but you MUST go on!